Supporting End-of-Life Care: Death Doulas, Death Cafes, & Grief Resources: Reference List on Death Doulas & Death Cafes

Baldwin, P. K. (2017). Death cafes: Death doulas and family communication. Behavioral Sciences, 7(2). Article bs7020026. https://doi.org/10.3390/bs7020026

Cassel E. J. (1982). The nature of suffering and the goals of medicine. The New England journal of medicine, 306(11), 639–645. https://doi.org/10.1056/NEJM198203183061104 (An excellent holistic viewpoint of suffering, and the complexities surrounding suffering)

Hahn, S., & Ogle, K. (2022). "Would you like me to take your hand?": Introduction to End of Life Doulas. Omega, 302228221097290. Advance online publication. https://doi.org/10.1177/00302228221097290

Karnes, B. & Gyulay, J. (1984). Healing the dying person: Theoretical and practical approaches to emotional, mental, and spiritual dimensions. American Journal of Hospice and Palliative Medicine, 1(4), 28-32. https://doi.org/10.1177/104990918400100408

Krawczyk, M., & Rush, M. (2020). Describing the end-of-life doula role and practices of care: perspectives from four countries. Palliative care and social practice, 14, Article 2632352420973226. https://doi.org/10.1177/2632352420973226

Erratum to "Describing the end-of-life doula role and practices of care: perspectives from four countries". (2021). Palliative care and social practice, 15, 2632352421992226. https://doi.org/10.1177/2632352421992226

Mallon A. (2021). Compassionate community structure and function: a standardised micro-model for end-of-life doulas and community members supporting those who wish to die at home. Palliative care and social practice, 15, 26323524211052569. https://doi.org/10.1177/26323524211052569

Rawlings, D., Miller-Lewis, L., Tieman, J., & Swetenham, K. (2022). An international survey of death doula training organizations: The views of those driving death doula training and role enactment. Palliative Care and Social Practice, 16, Article 26323524221123344. https://doi.org/10.1177/26323524221123344

Rawlings, D., Davies, G., & Tieman, J. (2021). Compassionate communities - What does this mean for roles such as a death doula in end-of-life care?. Public health, 194, 167–169. https://doi.org/10.1016/j.puhe.2021.02.038

Rawlings, D., Litster, C., Miller-Lewis, L., Tieman, J., & Swetenham, K. (2021). End-of-life doulas: A qualitative analysis of interviews with Australian and International death doulas on their role. Health & social care in the community, 29(2), 574–587. https://doi.org/10.1111/hsc.13120

Rawlings, D., Mills, S., Miller-Lewis, L., Swetenham, K., & Tieman, J. (2022). National Death Doula Roundtable [RePaDD White paper No. 9, Adelaide, South Australia]. Flinders University Research Centre for Palliative Care, Death and Dying. https://doi.org/10.25957/8x3k-0588

Rawlings, D., Litster, C., Miller-Lewis, L., Tieman, J., & Swetenham, K. (2020). The voices of death doulas about their role in end-of-life care. Health & social care in the community, 28(1), 12–21. https://doi.org/10.1111/hsc.12833

Rawlings, D., Tieman, J., Miller-Lewis, L., & Swetenham, K. (2019). What role do Death Doulas play in end-of-life care? A systematic review. Health & social care in the community, 27(3), e82–e94. https://doi.org/10.1111/hsc.12660

Rawlings, D., Miller-Lewis, L., Tieman, J. (2022). ‘It’s like a wedding planner’: Dying2Learn Massive Open Online Course participants views of the Death Doula role. Progress in Palliative Care, 30(5), 281-287. https://doi.org/10.1080/09699260.2021.2021371

Yoong, S. Q., Hongli S. G., & Zhang, H. (2022). Death doulas as supportive companions in end-of-life care: A scoping review. Palliative Medicine, 36(5), 795-809. https://doi.org/10.1177/02692163221080659

Carter, S. (2012). Student reviews: Death-with a cup of tea and a slice of cake. BMJ 344, Article d8150. https://doi.org/10.1136/sbmj.d8150

Chang, M. (2021). Death Cafés: Where Communities Affirm Grief. American journal of public health, 111(S2), S82–S83. https://doi.org/10.2105/AJPH.2021.306379

Flegel, K., & Patrick, K. (2016). Discussing death with the living. CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne, 188(10), 707. https://doi.org/10.1503/cmaj.160547

Hammer, R., Ravindran, N., & Nielsen, N. (2021). Can Death Cafés resuscitate morale in hospitals?. Medical humanities, 47(1), 2–3. https://doi.org/10.1136/medhum-2018-011607

Hopes, P. (2016). Talking about death and dying. Learning Disability Practice, 19(8),12. https://dx.doi.org/10.7748/ldp.19.8.12.s14

Laranjeira, C., Dixe, M. A., Querido, A., & Stritch, J. M. (2022). Death cafés as a strategy to foster compassionate communities: Contributions for death and grief literacy. Frontiers in psychology, 13, Article 986031. https://doi.org/10.3389/fpsyg.2022.986031

Miles, L. & Corr, C. A. (2017). Death café: What is is and what we can learn from it. OMEGA-Journal of Death and Dying, 75(2), 151-165. https://doi.org/10.1177/0030222815612602

Morgan, J. (2017). In Context: Radio: Celebrating life in a death café. The Lancet Neurology, 16(9), P960. https://doi.org/10.1016/S1474-4422(17)30203-X

Nelson, K. E., Wright, R., Abshire, M., & Davidson, P. M. (2018). All Things Death and Dying: Health Professional Students Participating in the Death Café Model. Journal of palliative medicine, 21(6), 850–852. https://doi.org/10.1089/jpm.2017.0440

Nyatanga B. (2017). Do you come here often? The idea of a death café. British journal of community nursing, 22(2), 100. https://doi.org/10.12968/bjcn.2017.22.2.100

Richards, N., Koksvik, G., Gerson, S., & Clark, D. (2020). The global spread of death café: A cultural intervention relevant to policy? Social Policy and Society, 19(4), 553-572. https://dx.doi.org/10.1017/S1474746420000081