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2020 I/DD Services Conference: Friday, March 20, Late Morning Concurrent Sessions

March 19-20, 2020

Conference Brochure

                                                                                                                        

Session A - Real Life Application of Advance Care Planning...

1.

Variables that influence the medical decision regarding Advance Directives and their impact on end-of-life care.

 

Arruda LM, Abreu KPB, Santana LBC, Sales MVC.

 

Einstein (Sao Paulo). 2019 Oct 10;18:eRW4852. doi: 10.31744/einstein_journal/2020RW4852. eCollection 2020. Review. English, Portuguese.

 

PMID: 31618287 [PubMed - indexed for MEDLINE] Free PMC Article

 

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2.

Barriers and facilitators to implementing a pragmatic trial to improve advance care planning in the nursing home setting.

 

Palmer JA, Parker VA, Mor V, Volandes AE, Barre LR, Belanger E, Carter P, Loomer L, McCreedy E, Mitchell SL.

 

BMC Health Serv Res. 2019 Jul 29;19(1):527. doi: 10.1186/s12913-019-4309-5.

 

PMID: 31357993 [PubMed - indexed for MEDLINE] Free PMC Article

 

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3.

Significance of advance care planning in nursing homes: views from patients with cognitive impairment, their next of kin, health personnel, and managers.

 

Sævareid TJL, Førde R, Thoresen L, Lillemoen L, Pedersen R.

 

Clin Interv Aging. 2019 May 29;14:997-1005. doi: 10.2147/CIA.S203298. eCollection 2019.

 

PMID: 31213786 [PubMed - indexed for MEDLINE] Free PMC Article

 

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4.

Advance care decision making and planning

 

Tran M, Grant M, Clayton J, Rhee J.

 

Aust J Gen Pract. 2018 Nov;47(11):753-757. doi: 10.31128/AJGP-06-18-4613.

 

PMID: 31207671 [PubMed - indexed for MEDLINE] Free Article

 

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5.

Advance care planning in progressive neurological diseases: lessons from ALS.

 

Seeber AA, Pols AJ, Hijdra A, Grupstra HF, Willems DL, de Visser M.

 

BMC Palliat Care. 2019 Jun 13;18(1):50. doi: 10.1186/s12904-019-0433-6.

 

PMID: 31196046 [PubMed - indexed for MEDLINE] Free PMC Article

 

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6.

'We have no crystal ball' - advance care planning at nursing homes from the perspective of nurses and physicians.

 

Kastbom L, Milberg A, Karlsson M.

 

Scand J Prim Health Care. 2019 Jun;37(2):191-199. doi: 10.1080/02813432.2019.1608068. Epub 2019 May 24.

 

PMID: 31122099 [PubMed - indexed for MEDLINE] Free PMC Article

 

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7.

Study protocol to investigate the efficacy of normalisation of Advance Care Planning (ACP) for people with chronic diseases in acute and community settings: a quasi-experimental design.

 

Jeong S, Barrett T, Ohr SO, Cleasby P, David M, Chan S, Fairlamb H, Davey R, Saul P.

 

BMC Health Serv Res. 2019 May 4;19(1):286. doi: 10.1186/s12913-019-4118-x.

 

PMID: 31054578 [PubMed - indexed for MEDLINE] Free PMC Article

 

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8.

Design and Implementation of Patient Portal-Based Advance Care Planning Tools.

 

Lum HD, Brungardt A, Jordan SR, Phimphasone-Brady P, Schilling LM, Lin CT, Kutner JS.

 

J Pain Symptom Manage. 2019 Jan;57(1):112-117.e2. doi: 10.1016/j.jpainsymman.2018.10.500. Epub 2018 Oct 25.

 

PMID: 30595147 [PubMed - indexed for MEDLINE] Free PMC Article

 

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9.

Planning ahead with dementia: what role can advance care planning play? A review on opportunities and challenges.

 

Bosisio F, Jox RJ, Jones L, Rubli Truchard E.

 

Swiss Med Wkly. 2018 Dec 30;148:w14706. doi: 10.4414/smw.2018.14706. eCollection 2018 Dec 17. Review.

 

PMID: 30594990 [PubMed - indexed for MEDLINE] Free Article

 

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Session B - Medical Co-morbidity and I/DD

1.

High Incidence of Copy Number Variants in Adults with Intellectual Disability and Co-morbid Psychiatric Disorders.

 

Viñas-Jornet M, Esteba-Castillo S, Baena N, Ribas-Vidal N, Ruiz A, Torrents-Rodas D, Gabau E, Vilella E, Martorell L, Armengol L, Novell R, Guitart M.

 

Behav Genet. 2018 Jul;48(4):323-336. doi: 10.1007/s10519-018-9902-6. Epub 2018 Jun 7.

 

PMID: 29882083 [PubMed - indexed for MEDLINE] Free PMC Article

 

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2.

Chromosomal microarray analysis in developmental delay and intellectual disability with comorbid conditions.

 

Fan Y, Wu Y, Wang L, Wang Y, Gong Z, Qiu W, Wang J, Zhang H, Ji X, Ye J, Han L, Jin X, Shen Y, Li F, Xiao B, Liang L, Zhang X, Liu X, Gu X, Yu Y.

 

BMC Med Genomics. 2018 May 24;11(1):49. doi: 10.1186/s12920-018-0368-4.

 

PMID: 29793483 [PubMed - indexed for MEDLINE] Free PMC Article

 

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3.

Dual Diagnosis: A Problematic Construct When Applied to Persons with Intellectual Disabilities.

 

McLennan JD.

 

Can J Psychiatry. 2018 Sep;63(9):597-601. doi: 10.1177/0706743718772515. Epub 2018 Apr 19.

 

PMID: 29673269 [PubMed - indexed for MEDLINE] Free PMC Article

 

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4.

Prevalence and treatment of diabetes mellitus and hypertension among older adults with intellectual disability in comparison with the general population.

 

Axmon A, Ahlström G, Höglund P.

 

BMC Geriatr. 2017 Nov 23;17(1):272. doi: 10.1186/s12877-017-0658-2.

 

PMID: 29169334 [PubMed - indexed for MEDLINE] Free PMC Article

 

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5.

Mutual associations between intellectual disability and epilepsy-related psychiatry disability: Population-based study.

 

Wang Z, Guo C, Chen G, Zhang L, Wen X, Zheng X.

 

Medicine (Baltimore). 2017 May;96(19):e6831. doi: 10.1097/MD.0000000000006831.

 

PMID: 28489764 [PubMed - indexed for MEDLINE] Free PMC Article

 

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Session C - Transition to Employment

1.

Future Work and Disability: Promoting Job Motivation in Special Employment Centers in Spain.

 

Romeo M, Yepes-Baldó M.

 

Int J Environ Res Public Health. 2019 Apr 24;16(8). pii: E1447. doi: 10.3390/ijerph16081447.

 

PMID: 31022862 [PubMed - indexed for MEDLINE] Free PMC Article

 

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2.

The association between employment status and health among British adults with and without intellectual impairments: cross-sectional analyses of a cohort study.

 

Emerson E, Hatton C, Baines S, Robertson J.

 

BMC Public Health. 2018 Mar 27;18(1):401. doi: 10.1186/s12889-018-5337-5.

 

PMID: 29587712 [PubMed - indexed for MEDLINE] Free PMC Article

 

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3.

Does assistive technology contribute to social inclusion for people with intellectual disability? A systematic review protocol.

 

Owuor J, Larkan F, Kayabu B, Fitzgerald G, Sheaf G, Dinsmore J, McConkey R, Clarke M, MacLachlan M.

 

BMJ Open. 2018 Feb 10;8(2):e017533. doi: 10.1136/bmjopen-2017-017533.

 

PMID: 29440153 [PubMed - indexed for MEDLINE] Free PMC Article

 

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4.

Factors associated with sustained community employment among adults with autism and co-occurring intellectual disability.

 

Chan W, Smith LE, Hong J, Greenberg JS, Lounds Taylor J, Mailick MR.

 

Autism. 2018 Oct;22(7):794-803. doi: 10.1177/1362361317703760. Epub 2017 Jul 9.

 

PMID: 28691500 [PubMed - indexed for MEDLINE] Free PMC Article

 

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5.

Financial and employment impact of intellectual disability on families of children with autism.

 

Saunders BS, Tilford JM, Fussell JJ, Schulz EG, Casey PH, Kuo DZ.

 

Fam Syst Health. 2015 Mar;33(1):36-45. doi: 10.1037/fsh0000102. Epub 2015 Jan 12.

 

PMID: 25581557 [PubMed - indexed for MEDLINE] Free PMC Article

 

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6.

Work Environment-Related Factors in Obtaining and Maintaining Work in a Competitive Employment Setting for Employees with Intellectual Disabilities: A Systematic Review.

 

Ellenkamp JJ, Brouwers EP, Embregts PJ, Joosen MC, van Weeghel J.

 

J Occup Rehabil. 2016 Mar;26(1):56-69. doi: 10.1007/s10926-015-9586-1. Review.

 

PMID: 26112400 [PubMed - indexed for MEDLINE] Free PMC Article

 

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Session D - I/DD and Dementia: Strategies for Care

1.

Effects of Dementia Care Mapping on well-being and quality of life of older people with intellectual disability: A quasi-experimental study.

 

Schaap FD, Dijkstra GJ, Stewart RE, Finnema EJ, Reijneveld SA.

 

J Appl Res Intellect Disabil. 2019 Jul;32(4):849-860. doi: 10.1111/jar.12576. Epub 2019 Mar 13.

 

PMID: 30868692 [PubMed - indexed for MEDLINE] Free PMC Article

 

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2.

The Medical Care of People With Intellectual Disability.

 

Sappok T, Diefenbacher A, Winterholler M.

 

Dtsch Arztebl Int. 2018 Nov 29;116(48):809-816. doi: 10.3238/arztebl.2019.0809. Review.

 

PMID: 31888794 [PubMed - indexed for MEDLINE] Free Article

 

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3.

Individual cognitive stimulation therapy for people with intellectual disability and dementia: protocol of a feasibility randomised controlled trial.

 

Ali A, Brown E, Spector A, Aguirre E, Hassiotis A.

 

BMJ Open. 2018 Dec 9;8(12):e022136. doi: 10.1136/bmjopen-2018-022136.

 

PMID: 30530576 [PubMed - indexed for MEDLINE] Free PMC Article

 

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4.

Association of Dementia With Mortality Among Adults With Down Syndrome Older Than 35 Years.

 

Hithersay R, Startin CM, Hamburg S, Mok KY, Hardy J, Fisher EMC, Tybulewicz VLJ, Nizetic D, Strydom A.

 

JAMA Neurol. 2019 Feb 1;76(2):152-160. doi: 10.1001/jamaneurol.2018.3616.

 

PMID: 30452522 [PubMed - indexed for MEDLINE] Free PMC Article

 

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5.

Prevalence of Aging, Dementia, and Multimorbidity in Older Adults With Down Syndrome.

 

Bayen E, Possin KL, Chen Y, Cleret de Langavant L, Yaffe K.

 

JAMA Neurol. 2018 Nov 1;75(11):1399-1406. doi: 10.1001/jamaneurol.2018.2210.

 

PMID: 30032260 [PubMed - indexed for MEDLINE] Free PMC Article

 

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6.

A longitudinal study of brain anatomy changes preceding dementia in Down syndrome.

 

Pujol J, Fenoll R, Ribas-Vidal N, Martínez-Vilavella G, Blanco-Hinojo L, García-Alba J, Deus J, Novell R, Esteba-Castillo S.

 

Neuroimage Clin. 2018 Jan 28;18:160-166. doi: 10.1016/j.nicl.2018.01.024. eCollection 2018.

 

PMID: 29868444 [PubMed - indexed for MEDLINE] Free PMC Article

 

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7.

Epidemiology of estrogen and dementia in women with Down syndrome.

 

Schupf N, Lee JH, Pang D, Zigman WB, Tycko B, Krinsky-McHale S, Silverman W.

 

Free Radic Biol Med. 2018 Jan;114:62-68. doi: 10.1016/j.freeradbiomed.2017.08.019. Epub 2017 Aug 31. Review.

 

PMID: 28843780 [PubMed - indexed for MEDLINE] Free PMC Article

 

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8.

Use of antipsychotics, benzodiazepine derivatives, and dementia medication among older people with intellectual disability and/or autism spectrum disorder and dementia.

 

Axmon A, Kristensson J, Ahlström G, Midlöv P.

 

Res Dev Disabil. 2017 Mar;62:50-57. doi: 10.1016/j.ridd.2017.01.001. Epub 2017 Jan 18.

 

PMID: 28110116 [PubMed - indexed for MEDLINE] Free Article

 

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