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2021 I/DD Services Conference: Building Blocks for the Future in Practice: Thursday, October 7, Keynote Presentation

October 7-8, 2021

Conference Brochure

                                                                                                                                        

Current Issues in Developmental Disability Advocacy: What’s Happening and What You Can Do

1.

Parent-mediated interventions for promoting communication and language development in young children with Down syndrome.

O'Toole C, Lee AS, Gibbon FE, van Bysterveldt AK, Hart NJ.

Cochrane Database Syst Rev. 2018 Oct 15;10(10):CD012089. doi: 10.1002/14651858.CD012089.pub2.

PMID: 30321454 Free PMC article. Review.

2.

What About the Girls? Sex-Based Differences in Autistic Traits and Adaptive Skills.

Ratto AB, Kenworthy L, Yerys BE, Bascom J, Wieckowski AT, White SW, Wallace GL, Pugliese C, Schultz RT, Ollendick TH, Scarpa A, Seese S, Register-Brown K, Martin A, Anthony LG.

J Autism Dev Disord. 2018 May;48(5):1698-1711. doi: 10.1007/s10803-017-3413-9.

PMID: 29204929 Free PMC article.

3.

Highlights from the International Summit on Intellectual Disability and Dementia Implications for Brazil.

Santos FH, Watchman K, Janicki MP; International Summit on Intellectual Disability and Dementia.

Dement Neuropsychol. 2018 Oct-Dec;12(4):329-336. doi: 10.1590/1980-57642018dn12-040001.

PMID: 30546842 Free PMC article. Review.

4.

Long overdue: including adults with brain disorders in precision health initiatives.

Finucane BM, Myers SM, Martin CL, Ledbetter DH.

Curr Opin Genet Dev. 2020 Dec;65:47-52. doi: 10.1016/j.gde.2020.05.001. Epub 2020 Jun 13.

PMID: 32544666 Review.

5.

Child Protection, Disability and Obstetric Violence: Three Case Studies from Iceland.

Rice JG, Bjargardóttir HB, Sigurjónsdóttir HB.

Int J Environ Res Public Health. 2020 Dec 28;18(1):158. doi: 10.3390/ijerph18010158.

PMID: 33379294 Free PMC article.

6.

COVID-19 IDD: A global survey exploring family members' and paid staff's perceptions of the impact of COVID-19 on individuals with intellectual and developmental disabilities and their caregivers.

Linehan C, Araten-Bergam T, Baumbusch J, Beadle-Brown J, Bigby C, Birkbeck G, Bradley V, Brown M, Bredewold F, Chirwa M, Cui J, Godoy Gimenez M, Gomiero T, Kanova S, Kroll T, MacLachlan M, Mirfin-Veitch B, Narayan J, Nearchou F, Nolan A, O'Donovan MA, Santos FH, Siska J, Stainton T, Tideman M, Tossebro J.

HRB Open Res. 2020 Dec 3;3:39. doi: 10.12688/hrbopenres.13077.2. eCollection 2020.

PMID: 33392440 Free PMC article.

7.

How Do People With Intellectual Disability Engage With and Understand Gambling? A Qualitative Study of Adults in Victoria, Australia.

Pitt H, Thomas SL, Watson J, Shuttleworth R, Murfitt K, Balandin S.

Front Public Health. 2021 Jan 12;8:536520. doi: 10.3389/fpubh.2020.536520. eCollection 2020.

PMID: 33511094 Free PMC article.

8.

Clinical Development of Targeted Fragile X Syndrome Treatments: An Industry Perspective.

Lee AW, Ventola P, Budimirovic D, Berry-Kravis E, Visootsak J.

Brain Sci. 2018 Dec 5;8(12):214. doi: 10.3390/brainsci8120214.

PMID: 30563047 Free PMC article. Review.

9.

A health advocacy intervention for adolescents with intellectual disability: a cluster randomized controlled trial.

Lennox N, McPherson L, Bain C, O'Callaghan M, Carrington S, Ware RS.

Dev Med Child Neurol. 2016 Dec;58(12):1265-1272. doi: 10.1111/dmcn.13174. Epub 2016 Jun 25.

PMID: 27343021 Clinical Trial.

10.

Supporting adults with intellectual and developmental disabilities to participate in health care decision making.

Sullivan WF, Heng J.

Can Fam Physician. 2018 Apr;64(Suppl 2):S32-S36.

PMID: 29650742 Free PMC article. Review.

11.

What adults with intellectual and developmental disabilities say they need to access annual health examinations: System navigation support and person-centred care.

Potvin LA, Fulford C, Ouellette-Kuntz H, Cobigo V.

Can Fam Physician. 2019 Apr;65(Suppl 1):S47-S52.

PMID: 31023781 Free PMC article.

12.

Is Safety in the Eye of the Beholder? Safeguards in Research With Adults With Intellectual Disability.

McDonald KE, Conroy NE, Kim CI, LoBraico EJ, Prather EM, Olick RS.

J Empir Res Hum Res Ethics. 2016 Dec;11(5):424-438. doi: 10.1177/1556264616651182. Epub 2016 Jul 31.

PMID: 27307420 Free PMC article.

13.

Dual Diagnosis: A Problematic Construct When Applied to Persons with Intellectual Disabilities.

McLennan JD.

Can J Psychiatry. 2018 Sep;63(9):597-601. doi: 10.1177/0706743718772515. Epub 2018 Apr 19.

PMID: 29673269 Free PMC article.

14.

Factors leading to effective social participation promotion interventions for people with intellectual disability: a protocol for a systematic review.

Aparicio A, Arango P, Espinoza R, Villate V, Tenorio M.

Syst Rev. 2021 Jun 4;10(1):165. doi: 10.1186/s13643-021-01716-3.

PMID: 34088355 Free PMC article.

15.

Consumer inclusion: Experience of patients with intellectual and developmental disabilities informs primary care.

Boyd K, Diepstra H, Elbard K, Hamdani Y, Lunsky Y.

Can Fam Physician. 2018 Apr;64(Suppl 2):S8-S11.

PMID: 29650738 Free PMC article. No abstract available.

16.

Social isolation continued: Covid-19 shines a light on what self-advocates know too well.

Schormans AF, Hutton S, Blake M, Earle K, Head KJ.

Qual Soc Work. 2021 Mar;20(1-2):83-89. doi: 10.1177/1473325020981755.

PMID: 34253956 Free PMC article.

17.

Challenges for people with intellectual disabilities in law enforcement interactions in Ireland; thematic analysis informed by 1537 person-years' experience.

Gulati G, Cusack A, Bogue J, O'Connor A, Murphy V, Whelan D, Cullen W, McGovern C, Kelly BD, Fistein E, Kilcommins S, Dunne CP.

Int J Law Psychiatry. 2021 Mar-Apr;75:101683. doi: 10.1016/j.ijlp.2021.101683. Epub 2021 Mar 6.

PMID: 33689987

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